The Technical Group 6 (TG6-IEC Chagas disease) was convened by the Programme on Control of Chagas disease, WHO Department of Control of Neglected Diseases, to provide technical conctributions in the area of IEC about the Chagas disease problems. The Group is conformed by different professionals of different disciplines and geographical origins with a long experience in the subject.
Without conflicts of interest and with independence, it is expected that the group will meet periodically to collectively evaluate the diversity of realities where Chagas exists, evaluate instruments and define strategies and methodological proposals to address in a contextualized manner each of the three areas: Information, Education and Communication (IEC) in relation to Chagas. This group does not speak for WHO and is not representative of its Member States. However, it is up to the WHO to advise, with evaluations and technical contributions for the agency, with the aim of collaborating at a global level on the incidence of the Chagas problem, within the framework of the United Nations.
The TG6-IEC is a multidisciplinary group convened to make scientific-technical contributions to the WHO Chagas disease control programme. From an interdisciplinary / intersectoral approach to public health, TG6-IEC contributes to the achievement of the objectives of the programme, taking into account the geographical, historical, cultural, political, social and individual particularities of the contexts where the Chagas problem exists. Considering all the social actors involved, through Information, Education and Communication (IEC), TG6-IEC promotes the exercise of health rights, the care of individuals, their families and communities, seeking to eliminate or reduce the social, structural, subjective and objective barriers that impede, hinder or exclude them from the development of a healthy life.
IEC strategies require a multidisciplinary team, with the objective of being able to carry out their tasks in an interdisciplinary and intersectoral manner. For this reason, it was sought that the TG6-IEC Chagas be configured with a very particular profile of professionals with the aim of encompassing the multiple disciplines needed in the work of IEC and not only from these three specific components, but also from community work, social mobilization, management, among others.
For this reason, the group has been made up of people who share and intertwine their careers and recognised experiences in different fundamental areas in order to carry out the group's actions in a rigorous, committed and creative way at the same time. Members of the TG6-IEC are members of associations of people affected by Chagas disease; specialists in education, anthropology and social and community mobilization; specialists in public and community health; and experts in art and health.
Assistente Social. Mestre em Serviço Social pela Pontifícia Universidade Católica de São Paulo- Brasil. Doutoranda em Gerontologia - Faculdade de Ciências Médicas –FCM- Universidade Estadual de Campinas-UNICAMP/Brasil.
Temas estudados, investigados, publicados: Controle Social e participação social de usuários no Hospital de Clínicas-UNICAMP. Atenção e cuidado à pessoa idosa na atenção básica de Saúde em Campinas. Chagas e Trabalho no Meio Urbano. Associações Civis e garantias dos direitos de saúde: experiência de um grupo de portadores de doença de Chagas. Desafios e perspectivas na organização do cuidado à saúde da população idosa na atenção básica – uma revisão bibliográfica.
Exerce a atividade profissional no Hospital de Clínicas-HC/UNICAMP na atenção aos usuários atendidos no ambulatório de Doença de Chagas. Integra o Grupo de Estudos em Doença de Chagas-GedoCh/UNICAMP.
É membro do Conselho Científico da Associação de Portadores de Doença de Chagas de Campinas e Região-ACCAMP e do Conselho Consultivo da Federação Internacional de Associações de pessoas afetadas pela doença de Chagas-FINDECHAGAS.
É responsável pelo atendimento social, integrando a equipe de saúde, aos usuários do ambulatório de Geriatria.
Coordena o Grupo de Educação em Saúde “Flor da Terceira Idade”. É supervisora titular do Programa de Aprimoramento em “Serviço Social, Saúde e Envelhecimento” da FCM/UNICAMP.
Exerceu a tutoria do Curso de Educação a Distância –EAD “Saúde e Envelhecimento da Pessoa Idosa” da Fundação Osvaldo Cruz-FIOCRUZ.
Ministrou aula em Faculdades de Serviço Social: Faculdade Santa Lucia em Mogi Mirim, Faculdade Salesiana Dom Bosco em Americana e Pontifícia Universidade Católica de Campinas.
Elabora e contribui na organização de material de cunho educativo e informativo: folhetos, vídeos, jornais, etc... relacionados a doença de Chagas, Doenças Negligenciadas, Direitos à saúde e Envelhecimento.
Participa, organiza e coordena eventos, fóruns de discussão, seminários relacionados a estes temas. Desenvolve abordagens sobre estes temas em oficinas, aulas, rodas de conversa. Contribui para o fortalecimento do controle social por parte da sociedade civil organizada, como as associações de pessoas vivendo com doença de Chagas para conquista de legislação como as Leis Municipais aprovadas em três municípios da região instituindo o Dia Municipal da Pessoa Vivendo com Doença de Chagas, a Semana Municipal de Conscientização sobre as Doenças Negligenciadas e o Projeto de Lei Nacional sobre Doenças Negligenciadas.
PhD in Advanced Studies in Social Anthropology, from the University of Barcelona. Master in Anthropology and Development from the University of Chile, Social Worker from the Universidad de la Frontera in Chile.
In Barcelona she carried out an applied investigation with Bolivian people affected by Chagas disease, which allowed to know the ways in which people are affected by Chagas disease in the framework of migration and to understand, the mechanisms through which the team intervened in a non-endemic disease. Her research contributed to lay the foundations of community and social intervention, in relation to Chagas disease in Unitat de Medicina Internacional Drassanes at Barcelona.
She currently works in teaching and research at the Autonomous University of Chile and the Alberto Hurtado University. Develop social research in health. Currently thanks to a Postdoctoral Fondecyt (3160106) she develops the line of reproductive health and migrations. She has researched and published in areas of health and migration.
Hes interests in both intervention and research, has conjugated with other interest as photography, watercolor, elements that interact creatively, both in her intellectual work, as in working with groups and community intervention, as well as in the development of intervention strategies with people affected by Chagas disease.
It has laid the foundations of community work with the Bolivian population in the Unit of Tropical Medicine and International health Drassanes of the Catalan Institute of Health, has been a founding member of the Association of people affected by Chagas disease and adviser of the International federation of associations of people affected by Chagas disease FINDECHAGAS.
Fine Arts artist, Expressive Arts Therapist (ISPA Institute, Barcelona, Spain), Educational Expressive Arts Facilitator (Salve Regina University, RI, USA) and Social Educator (UNED University, Spain).
Born in Mexico City (Mexico), he developed as a Fine Arts artist at various art institutes in Mexico and Catalonia (Spain), as well as at different artists’ studios and ateliers, some of them in Italy.
He has presented more than a hundred solo and group exhibitions in numerous countries. His artistic work relates to the intention of Art as an instrument of transformation of consciousness and society.
He has coordinated several public pictorial projects, murals and artistic works.
He has worked with expressive arts for a wide range of groups: inmates in penitentiary centres, substance abusers, HIV-AIDS affected, migrants, illiterate adults, women victims of violence, elderly, children and teenagers with personality disorders, Chagas disease affected, etc.
Between 2009 and 2017 he was part of the chore educational staff at the Expressive Arts Therapy Master Degree at ISPA and IATBA Institutes (Barcelona).
As an expressive arts therapist, he consults privately in Girona (Spain). He also offers professional supervision on the same field.
Since 2006 has participated in several artistic, educational, therapeutic and healthcare programs for a variety of peoples related to the Chagas disease in different areas, all driven at the Drassanes-Vall d’Hebron Unit of Tropical Diseases and International Medicine (Barcelona).
Since 2017 he is a current member of the WHO TG6-IEC.
Degree in Medicine and Specialist in Hematology at the University of Pernambuco-UPE / Brazil.
Master in Public Health, by the Ministry of Health / Oswaldo Cruz
Foundation / Aggeu Magalhães-FIOCRUZ Research Center. Medicine Member of the Reference Service in Chagas Disease of the State of Pernambuco-PROCAPE / UPE.
Collaborator in various research projects and publications in Chagas' disease. Her research line involves the social, cultural and artistic area for patients with Chagas disease Coordinator of CorArte Project: Heart with Art, developed with patients in service in the Reference Service.
Adviser and Member of the "Pernambuco Association of Patients with Chagas Disease" (APDCIM), the first association in the world, created in 1987.
Adviser of the FINDECHAGAS (International Federation of Associations of People Affected by Chagas Disease).
Diploma in nursing. Master in International Health and Tropical Medicine. Post degree in Health Promotion and Health Education (University of Barcelona).
Author of the pedagogical guide of the Program of the expert patient Catalonia® in chronic phase Chagas disease of the Catalan Institute of Health. Trainer of expert patients and coordinator of patient groups. Author of various educational materials: "Saber o no saber. Me siento bien, dicen que tengo la enfermedad de Chagas" (informative and documentary film about Chagas disease in an european context), "Around me" (educational game about the determinants of health).
Principal investigator of the research module project for primary care professionals Barcelona. XB 2012 Plan of the Institut Català de la Salut. Research: "Knowledge regarding Chagas disease in patients and health professionals, in a non-endemic environment: are there differences?"
Founding member of the Association Friends of the Personas affected by the Chagas disease (ASAPECHA) where continues to be an active member. Organizing member of the FINDACHAGAS Assemble in Barcelona (2012).
She works as a nurse in the Health Unit of International Drassanes-Vall d'Hebron of Barcelona since 1999, serving people affected by Chagas disease and working with their communities.
Degree in Medicine and Surgery, Universitat de Barcelona. Specialist in Clinical Infectology and Parasitology, Fundação Medicina Tropical, Manaus, Brasil. Master Science in Public Health, “Escola Nacional de Saúde Pública/Fundação Oswaldo Cruz”. Rio de Janeiro, Brazil.
Currently, Consultant physician at the Infectology Department-International Health Drassanes Unit, Hospital, Hospital Universitari Vall d'Hebron, Collaborator in various research projects and publications in the field of international health (community health approach in Sexual Affective Health, Tuberculosis and Chagas’ disease and in the Health Determinants). Previously collaborator in research and public health projects in the field of malaria and public health in the Amazon basin, Brazil.
Artist, mainly in the fields of drawing, painting and writing. Both disciplines, medicine and art, are used in his career for the creation of Health Education tools (www.espictools.cat), in different formats (games, songs, documental, animations, …), specific in the field of International Health.
Foundational Member of the “Asociación de Personas Afectadas por la Enfermedad de Chagas de Barcelona” (ASAPECHA). Adviser of the FINDECHAGAS (International federation of associations of people affected by Chagas disease)
Biologist (Universidad Nacional de Córdoba, Argentina), Specialist in Social Sciences, with mention in health (Facultad Latinoamericana de Ciencias Sociales), Specialist in Epistemologies of the South (Consejo Latinoamericano de Ciencias Sociales) and PhD in Education Sciences (Université de Geneve, Suisse).
The guiding thread of her career is the search for elements that make it possible to understand the problem of Chagas from an integral perspective and, at the same time, highlight the role of education and communication as key tools to address this complex and current issue.
Independent researcher of the National Board of Scientific and Technical Research (Consejo Nacional de Investigaciones Científicas y Técnicas, CONICET). Her current research subject is “Analysis and development of didactic strategies and resources to deal with Chagas disease in different educational contexts.” Her work is being developed in the “Grupo Didática de las Ciencias” (La Plata, Argentina), through research activities, teaching, communication and extension.
She is founder and coordinator of the group ¿De qué hablamos cuando hablamos de Chagas? (www.hablamosdechagas.com), whose main objective consists of promoting an approach of Chagas from an integrated and innovative perspective in different educational contexts, employing various languages to communicate understandings of the subject. Linking multiple voices, diverse artistic expressions and unconventional spaces, the group seeks to install the Chagas theme in different scenarios, aiming to strengthen the role of education and communication in the public treatment of this problem.
She is member of the Advisory Board of the International Federation of Associations of People Affected by Chagas Disease (FINDECHAGAS).
Graduada en Medicina y cirugía en la Universidad de Padua (Italia); Phd en Enfermedades Tropicales en la Universidad “La Sapienza” (Roma, Italia).
Desde 1979 voluntaria in Ecuador, provincia de Esmeraldas, en intervenciones de Atención Primaria de la Salud con enfoque de epidemiología comunitaria y control comunitario de problemas prevalentes (malaria, pian, oncocercosis).
Desde 1998 hasta 2010 coordinadora de la intervención en Chagas del Centro de Medicina Tropical del Hospital Sacro Cuore-Don Calabria de Negrar (Verona, Italia).
Es autora y coautora en diferentes publicaciones sobre la enfermedad de Chagas y la participación de la comunidad en el control de los problemas de salud prevalentes.
También es responsable de la intervención para el control comunitario del Chagas en algunas comunidades indígenas Awa de la provincia de Esmeraldas (Ecuador).
Además es Presidenta del Centro de Epidemiología Comunitaria y Medicina Tropical (Cecomet) de Esmeraldas (Ecuador), miembro fundador de la Ailmac (Associazione italiana di lotta alla malattia di Chagas) y asesora de FINDECHAGAS (Federación Internacional de Asociaciones de Personas Afectadas por la Enfermedad de Chagas).
Nacida en Bolivia, con nacionalidad española. Se licenció en Bioquímica y Farmacia, por la Universidad Mayor Real y Pontificia de San Francisco Xavier de Chuquisaca, Bolivia. Especialista en Microbiología y Bacteriología, Universidad Gabriel René Moreno, Santa Cruz, Bolivia. Realizó el Diploma de estudios avanzados e investigación, Universidad de Valencia – España; Máster en Medicina Tropical, Universidad de Valencia-España y Máster en Salud Internacional, Universidad de Alicante - España
Tiene diversas publicaciones y asistencia a congresos, sobre el tema de Chagas. Realizó el Curso de Lider Paciente Crónico Activo. Conselleria de Sanitat de la Comunidad Valenciana. España
Es socia Fundadora de ASAPECHAVAE (Asociación de afectados por la enfermedad de Chagas, voluntarios y amigos) Valencia - España, julio de 2009. Socia Fundadora de la Federación Internacional de Asociaciones de afectados por la enfermedad de Chagas (octubre de 2010). También es socia Fundadora de ACHACOVA ( Asociación de la enfermedad de Chagas de la Comunidad Valenciana).
A lo largo de su trayectoria profesional ha realizado diversas actividades relacionadas con los afectados por la enfermedad: Talleres, conferencias y charlas sobre la patología, a los colectivos provenientes de las zonas endémicas, personas autóctonas y sanitario. También Campañas de cribado para la enfermedad, si son positivos, derivados para su atención sanitaria, tratamiento si procede y posterior seguimiento. Atención Psicológica para portadores, familiares y entorno social. Encuentros de Ayuda Mutua y Autoayuda.
Degree in Medicine at the University of Pernambuco-UPE / Brazil. Specialist in Cardiology at the University of São Paulo-USP / Brazil.
Master in Tropical Medicine, Federal University of Pernambuco, Brazil.
Currently, Adjunct Professor of the discipline of Cardiology at the University of Pernambuco. Coordinator of the Reference Service in Chagas Disease of the State of Pernambuco-PROCAPE/UPE.
Collaborator in various research projects and publications in the field of international health (community health approach and Chagas' disease). His research line involves the area of integral and multiprofessional care for patients with Chagas disease.
Founder and Foundational Member of the "Pernambuco Association of Patients with Chagas Disease" (APDCIM), the first association in the world, created in 1987.
Adviser of the FINDECHAGAS (International Federation of Associations of People Affected by Chagas Disease)
Integrante de la secretaría técnica por parte de la OMS.
Assistant to the Programme of Control of Chagas disease of WHO (since 2012), the Global Yaws Eradication Programme of WHO (since 2007) and the Global Buruli Ulcer Initiative (since 1999).
Integrante de la secretaría técnica por parte de la OMS.
Manager of the Programme on Control of Chagas disease, Department of Control of Neglected Tropical Diseases, WHO.
Graduated in Medicine & Surgery by the University of Barcelona. Diploma of Tropical Medicine & Hygiene of The Royal College of Physicians of London. MSc Infection & Health in the Tropics by the London School of Hygiene and Tropical Medicine, University of London. Doctorate in Tropical Medicine by the Oswaldo Cruz Institute, Oswaldo Cruz Foundation (IOC-Fiocruz). Former researcher in the Department of Tropical Medicine, IOC-Fiocruz, Rio de Janeiro. Guest professor of the German Navy Institute of Medicine, Kiel, Germany; University of Barcelona; Autonomous University of Barcelona; IOC - Fiocruz, Brazil, among others. Tropical Medicine consultant of various governmental and non-governmental institutions, such as: National Health Foundation of the Ministry of Health of Brazil; National Park of Jau, Brazil; Médecins Sans Frontières Pan-American Health Organization; national networks of research and surveillance on tropical/neglected diseases; among others. Member of the scientific or organizer committees of several scientific events in various countries of Europe, South and North America. Coordinator of health projects in the Brazilian Amazon basin with the German and Spanish cooperation.